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Vacation and a Feeding Evaluation, A Look Ahead
James and I will be setting off on a big adventure next week (Dad and Grandma will follow shortly after). Looking forward to lots of fun, and hoping for some insight from a very important appointment...
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Sometimes You Have to Ask for What You Want
I think it’s good to put what you want out into the universe every once in awhile. For me it brings much-needed focus, gives me a little accountability, and it helps me define exactly what it is that I...
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Vacation with James – We Loved Every Bit of It!
My intention was to blog at least a little during our vacation, but that didn’t happen. So today I’m going to post a few photos, and then I’ll get back on track next week with a full update on James’...
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James’ Feeding Evaluation: A Peek into The Kennedy Krieger Institute
We went to Baltimore with one goal in mind; a plan for James’ feeding and weight gain. When we left Baltimore that’s exactly what we had. It doesn’t get much better than asking for what you want, then...
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James and His Tube, A Little Update
Been too long since I’ve taken the time to sit and write a little. And I can tell because as hectic as life has been, it feels ten times that hectic in my head. This time when I sit and think, process...
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Butterflies and Restlessness, The Night Before it All Begins
We’re here. We’re really doing this. Feeling a little anxious tonight. The way I used feel to a lifetime ago on a night before a big test or final exam, butterflies and all. I’m excited to get things...
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Baltimore, Day 1
Counting down the final minutes of our first day. We made it. I’m hoping this is the toughest it’ll get, although I’m not entirely convinced that will be the case. A few of my favorite things from...
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Weight Gain, Growth, and Percentiles; Little Guy Isn’t So Little Anymore!
One year ago today James had surgery to place his g-tube. I remember the night before surgery, giving James a bath and crying. I fought back tears all day, but as I watched my sweet boy playing happily...
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